Life on the Spectrum

I recently read a book by a woman with Asperger’s who said that she does not wish to be cured, but she would support the idea of a voluntary cure — that is, if a cure for autism were to be found, she would be in favour of the idea of curing people who wished to be cured.

The problem there is, there is no such thing as a “voluntary” cure.

if a cure became available, it would be given to autistic kids who are too young to make a choice for themselves. The “autism parents” I encounter online generally want their kids to be cured, and you can’t really blame them when you are aware of the challenges faced by autistic kids. Most parents want what they feel is best for their kids, and most parents sincerely believe that a cure is what’s best for their kids. Of course, younger children aren’t able to decide for themselves whether they want to be cured or not, and it’s unlikely that their parents would wait until they were old enough to decide.

The cure would probably be given to non-verbal adults who can’t speak for themselves or who are considered to not have the cognitive ability to decide for themselves whether or not they wish to be cured — the ones who are often called “low-functioning.” The problem is that this assessment of “low functioning” is based solely on observation rather than on a person’s actual cognitive abilities. Many autistic people are given this label simply because they can’t talk.

Of course, people will ask: “What’s wrong with curing low-functioning people?” It depends on what you consider to be low-functioning. Where do you draw the line? I never hear of “medium-functioning” or “moderate-functioning” autistic people. I hear only of high- and low-functioning. Where does “low-functioning” end and “high-functioning” begin? For many autistic adults who are considered high-functioning, their functioning level can change depending on things like fatigue, hunger/low blood sugar, stress, having their senses overwhelmed, etc. Also, as I said, if the cure is to be voluntary, then simply curing someone because they are considered “low-functioning” without their input is not exactly voluntary.

People who are accessing government services for themselves or their children for autism — for example, funding for intervention/therapy or help with life skills — would face having those services taken away because there is a cure available and therefore autistic people don’t need services anymore. When money is tight, as it always is, governments go on a cutting spree, and services to disabled people are almost always on the chopping block. So if you’re autistic, or your child is, and you want help, you’ll be told to go get yourself or your child cured because the government isn’t providing services anymore. They will probably say, in order to make you feel bad about asking for help, that they are going to spend the money on people for whom there is no cure — say, people with Down Syndrome, for example — and how could you not want these people to have services? Even such a thing as disability benefits would probably be contingent on going and getting cured.

Another concern I have about voluntary cures is the number of people who want a cure because they are depressed. They believe that autism is the cause of all their problems, and if they got rid of it, then everything would be sunshine, lollipops and rainbows. I’ve encountered male Aspies who want to be cured because they believe they will never have girlfriends as long as they have Asperger’s, and if they were cured then women would be apparently lining up at their doorsteps wanting to date them. My belief is that if an Aspie were cured, that doesn’t mean that they’re going to wake up with all their social skills and dating/relationship skills intact immediately, with no effort or work on their part. Even NTs have to learn social skills and relationship skills. They don’t just appear overnight. I know plenty of Aspies who have partners and plenty of NTs who do not. Also, depression might not go away simply because a person no longer has an autism spectrum disorder. I’m afraid that the person who wishes to be cured because they are depressed might find that things are not magically improved simply because they have been cured of autism, and then they could be even more depressed. They might discover that they actually liked the way they were before they were cured, but the cure is not likely to be reversible.

In my ideal Aspie world, we would not jump to the conclusion that an autistic person needs to be cured because they are depressed. Instead, we would treat the depression. We would not say a person needs to be cured because they have difficulty with social skills; instead, we would teach them social skills.

Some autistic people live in group homes or other assisted-living types of arrangements because they are unable to live independently. I’m sure that’s another reason given for wanting to cure autism. But what if the person is happy in their living situation? What if they don’t care whether or not they live independently? Why fix what isn’t broken?

There may be an autism cure one day. It may be called “voluntary.” But I doubt very much that it actually will be voluntary, at least not in the way that I understand the meaning of the word “voluntary.”


Comments on: "There is no such thing as a “voluntary” cure" (1)

  1. The purpose of ‘cure’ is death. In ‘killing’ their DEFECTIVE child, the parents regain a portion of their ‘social capital’ that said child ‘stole’ from them by CHOOSING to be born as ‘autistic’ (read ‘Junior isn’t doing all he or she can to make his or her parents Socially Dominant.) Only getting away with actual *murder* is more effectual than ‘cure’, if one speaks of regaining one’s status within an ingroup – only, in many cases, killing a DEFECTIVE child does much more than merely restore one’s POWER.
    Murder, especially if *spun* right, causes POWER to increase greatly. That’s why it’s done.

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